Am I Autistic? A Guide to Diagnosis for Adults
With the availability of information about autism spectrum disorders (ASD) on the internet and other media sources, some adults may start to question whether they have ASD. The path to self-discovery may start when your child is diagnosed (this happened to my friend, Judy Endow), someone in your life may point out that you have some ASD traits, or you take an online ASD test which says you are likely autistic.
It’s not uncommon to receive a diagnosis in adulthood. Not as much was known about autism over 30 years ago, diagnostic testing has changed, and we are still struggling today with identifying women. Because ASD characteristics are becoming more known to the general population, undiagnosed adults are becoming aware that these characteristics explain their significant life-long experiences and struggles. Strong academic performance did not necessarily result in gainful employment. There have been problems expressing emotions, socializing, maintaining relationships, or on-going mental health issues such as anxiety or depression.
A New Understanding Of ASD
After reading and researching ASD and feeling certain this information describes yourself, you may experience an identity shift towards one that is autistic. Reflecting back on moments in your life, you may view things that happened in a different context, through the lens of autism. Retelling the story of your life may now have the ASD perspective. Remembering your stories, reflecting on them, and receiving feedback will change your narrative. This process of self-discovery helps to make sense of what’s happened in your life – how having ASD has shaped the way you think, react and feel. Maybe some of the confusion is gone, you understand yourself better, and in time you can share this discovery with people you trust.
This new identity may also cause feelings of loss, resentment or anger. It’s OK to feel this way as this is a life changing event and it can feel overwhelming. Try to think about the positive things such as your strengths. People continue to grow, change and adapt throughout their lifespan. You can learn new skills and find new ways to do things that may make life easier and more comfortable.
Do I Need An Autism Diagnosis?
Some adults may question whether they need a diagnosis later in life. Some people self-identify as autistic without receiving an official diagnosis. It’s a personal decision. What can be helpful in receiving the label is access to supports and services that may not be available without a diagnosis, i.e. an income support program that provides additional income if mental health issues prevent being able to work full time. Maybe you need a job coach, a support person to look in on you a couple of times a week, specialized mental health services, or supports in the workplace. A diagnosis can also provide peace of mind and validation that indeed, you do have ASD.
Self-diagnosis in the adult autism community is widely accepted. You can join a support group or get together with other ASD adults without a formal diagnosis. Pursuing a diagnosis can be expensive as most health plans won’t cover the cost and it can be difficult to find a professional who is adept at providing an adult diagnosis.
Assessment for Autism Diagnosis
A formal diagnosis is done by a psychologist, psychiatrist, or neuropsychologist who does adult ASD assessments. A good place to start to find such a person is through your local autism society or by contacting the governing body for that profession. Most have a college or association and they may be able to provide you with some names of people in your area. You can also ask around, maybe through members of a support group. How did they get their diagnosis – who did it? If there is a local university or medical teaching hospital, there may be a psychology department you can be referred to.
If a formal assessment is too expensive, contact the local autism society or services organization to see if they have someone on staff or a consulting psychologist. Some universities, hospitals or clinical centers offer assessments by supervised graduate students who need practical experience in diagnosing. If you are in on-going therapy for other issues, a therapist may suggest the possibility of ASD and be willing to give a diagnosis.
Keep in mind that there is no standardized screening tool tailored to adults that is universally endorsed. Some of the autism tests specifically designed for adults are: ADOS 2 Module 4, ADI-R, 3Di Adult, OCI-R, AFQ, SRS 2, RAADS-14, AdAS Spectrum.
What to Do Next After Receiving an Adult Autism Diagnosis
I have written about what to do after receiving an adult diagnosis so please consult this article for guidance. There is also the decision on who should be told about the diagnosis. I’ve written an in-depth blog about that.
If you want to be in a support group, contact your local autism society to see what they offer for adults. There are also on-line support options available. Here is a list of the groups on Facebook.
Here is a list of ASD resources and articles specific to women:
Autistic Women & Nonbinary Network (AWN)
Scottish Autism Online Support Programme for Autistic Women and Girls
Article – Asperger and Autism Spectrum: Women and Girls
The path to adult diagnosis is not an easy one and can have many challenges. Awareness and information around receiving an adult ASD diagnosis is improving, though. There are ways to connect with others and find support. Reach out and explore the many resources that are listed in this post. Read the insights of other adults on the spectrum. You will find that you are not alone.
Editorial Policy: Autism Awareness Centre believes that education is the key to success in assisting individuals who have autism and related disorders. Autism Awareness Centre’s mission is to ensure our extensive autism resource selection features the newest titles available in North America. Note that the information contained on this web site should not be used as a substitute for medical care and advice.
Looking for medical professionals in the Spokane, WA area who can possibly diagnose ASD for my 31 year old son. We are fairly positive his had Aspergers his entire life without our knowing. He lives with us, doesn’t leave the house unless he has to, spends 99% of his time in his room. He fits almost every symptom listed for Aspergers. I worry everyday how he will be able to take care of himself when his dad and I are no longer here.
The Autism Society of Washington – Spokane Chapter has a comprehensive resource guide that has a list of psychologists etc. http://www.autismsocietyofwa.org/asw-spokane/wp-content/uploads/2016/04/resource_manual20160408.pdf The guide is 6 yeasrs old so I am not sure if all of the information is still current. You could also contact the local chapter to see if they can make any recommendations for you – spokane@autismsocietyofwa.org
Maureen, I sincerely appreciate this article and the information provided within. I more so appreciate your comments and replies to all the people who have written you with questions, as you provide an abundance of resources and other sites to look at. Thank you for that. As someone with a plethora of “issues”; (currently ALL over the board), being diagnosed with autism in my 30’s is a possible/ potential huge variable along with other things, so I’m doing as much research as possible. I very much (and strongly so), would just appreciate an actual diagnosis either way. If I can obtain a diagnosis whether it concludes that I am indeed autistic OR not, I don’t care. I’m only looking for answers so that I can then be understanding AND forgiving of myself. But mostly so I can be proactive with what I do and how I take care of myself from now and into the future. In some ways I’m more scared of a lack of diagnosis. If it’s not Asperger’s than I need to know what. If I don’t know what I am struggling with I can’t even be proactive in my own life. Answers are very much needed. I want control within my own struggle. I could find the worst answers in my search for truth and clarity and still just be glad I actually found answers. Not knowing means not knowing what to do which makes me feel utterly helpless within my own life. I want to take control. I want to understand my own issues. I know, it can be harder to diagnose females but that doesn’t mean I’ve self-diagnosed myself -not yet at least 😉 ..
Again, thank you for all the information and time,
~alex-Rebecca
Dear Alex-Rebecca,
The journey to any diagnosis is an emotional one as it means discovering something new about ourselves and going forward with a new narrative. There is a growing awareness around autism in adulthood and I see more blogs written by autistic adults and the resources are growing. The female movement is gaining momentum too. You may also find these resources helpful – https://autismawarenesscentre.com/how-do-autistic-girls-present-differently-than-boys/ and this one – https://autismawarenesscentre.com/what-is-autistic-masking/ Stay focused on your goals even if there are bumps along the way because each bump will also lead you to new discoveries and information.
Hi, Im F 24 years old, I started out therapy last year cause I had double depression, after some therapy with my first psychologist he told me I may be bipolar, but I didn’t think that would be fitting, this year on January I started out therapy again with another psychologist so far I have been diagnosed with anxiety, social anxiety and depression, I have some moments on my life where I get sensory overload, and after those I dissociate, I personally think I might be autistic. Im kinda frustrated cause my therapist want me to connect with my feelings but she says I only see it on a logical way, and I kinda feel like she doesn’t believe my sensory issues.
I really think i might be neurodivergent, I would like to get a proper diagnosis. Im not on the US tho, and I have been looking around but Im not able to find someone with the capacity to give a diagnosis (I’m On Mexico City).
Thank you in advance.
Dear Manary,
I am not familiar with the diagnostic services for adults in Mexico City but here is a list of some of the organizations that work in the autism field. They may be good places to start to ask if they know of someone who does adult assessment.
Neurodesarrollo y Comunicacion S.A. de C.V.
Pasadena #11 Col. Del Valle
03100 Mexico D.F.
Mexico
Phone: 52-5-36-56-37 / 5-23-88-56
Fax: 52-5-36-55-18 / pern@df1.telmex.net
Proyecto de Investigacion Clinica. Experimental y Psicopedagogica en Autismo
Av. Universidad 3004, Co. Copilco-Universidad Del Coyoacan
04510 Mexico D.F.
Mexico
Phone: 52-5-622-2273
Fax: 52-5-550-2560
Email: felcruz@servidor.unam.mx
Sociadad Mexico de Autismo
Torcuato Tasso #335-402
Colonia Polanco
Mexico City 11580
Mexico
Phone: 525-545-7205
Asociacion Ciencias de la Conducta, Especialistas AC
Corot No.31 Col. Extremadura Insurgentes
Delegación Benito Juárez
C. P. 03740, México, D. F.
Teléfono: 8421-3802 y 5563-2969
Website: http://www.accespecialistas.com
Email: info@accespecialistas.com
My therapist just denied me a referral for autism assessment as an adult because he said it was not “medically necessary”. They say because I can live independently and can express myself intelligently as well as advocate for myself that I do not need an assessment. I tried to explain that a lifetime of social problems has caused major trauma and that I’d like an assessment so that mental health professionals can understand me better and provide better treatment. If an assessment for the cause of the trauma is not medically necessary I don’t know what is.
Brian, if you want to be assessed you have the right to do so. Having a diagnosis could also help you in the future should you need any additional supports. I will tell you that any autism support group will accept you even without a diagnosis so that opportunity should not be closed to you. Could you speak to your family doctor and ask if they can make an assessment referral for you?
I’m trying desperately to get my daughter (20yrs) tested in Northern Ca. If I get a response, I’m put on a waiting list. Anxiety has kept her out of a job and she only socializes on line. She has become extremely fixated on things that we feel are harmful. Thank you
While waiting for an assessment, I would try and address the anxiety. https://autismawarenesscentre.com/calming-strategies-to-support-a-person-with-autism/ Your daughter may also be struggling with burnout – https://autismawarenesscentre.com/what-is-autistic-burnout/ or has been masking over the years to hide her autistic traits – https://autismawarenesscentre.com/what-is-autistic-masking/
Here are a couple of article to read about online socializing – https://autismawarenesscentre.com/socially-connecting-learning-and-meeting-while-physically-apart-ideas-for-the-asd-community/ and screen time – https://autismawarenesscentre.com/increased-screen-time-in-the-age-of-covid-19/
The fixation is more than likely rumination – https://autismawarenesscentre.com/what-is-anger-rumination-and-how-does-it-affect-individuals-with-asd/
While you are waiting for a diagnosis, you can still join a support group through your local chapter of the Autism Society of America – California and so can your daughter. Most groups do not need you to have an official diagnosis in order to join.
If you scroll down this article that you posted the comment on, you’ll see I list specific resources for women and girls.
I’m in Livepool, England on a 8 year waiting list for an assessment! It is frustrating because I’ve known for awhile that I have allot of autistic traits but didn’t ask for help until now as a 22 year old. I should’ve asked when I first realized as a teenager, I probably would’ve been assessed/diagnosed faster.
Dee, I am not sure what organization has you on an 8 year waiting list, but here are some others you could contact to see if you could be assessed sooner – https://www.spectrumnorthwest.org/ https://theowltherapycentre.co.uk/services/show/asd-assessment-for-adults-42 https://www.merseycare.nhs.uk/our-services/halton/autism-spectrum-condition-diagnostic-service
I’m from Wood River IL. I’m trying to find a Dr that takes Meridian insurance to to an adult ASD diagnosis
Kat, I would suggest contacting your local Autism Society of America chapter and posing that question to them. https://autismpeoria.com/
Hi! I’m having a really hard time finding any place that does evaluations near me (Buena Vista, VA). I’m a 19 yr old female college student- my parents’ insurance still covers me, so there’s a chance that it will cover the cost. Can you help me? Thank you!
Samara, you may want to start by reaching out to your local Autism Society of America Chapter as they may have a list of who does diagnostic assessment in your area – http://www.asacv.org/contactus Starting on page 18 of this document, there is a list of therapists but I am not sure who is diagnosing – https://support.psyc.vt.edu/sites/default/files/2020-01/Parent%20Resource%20Guide%20updated%20December%202019.pdf State Laws for autism and insurance coverage – https://www.ncsl.org/research/health/autism-and-insurance-coverage-state-laws.aspx
I wish I could get someone to help me with an adult diagnosis. I don’t have money for a doctor or psychologist. Does anyone know if someone can help me? I live in North Carolina.
Here are some possibilities for adult diagnosis in North Carolina – https://www.cidd.unc.edu/services/clinical/ https://www.etheridgepsychology.com/autism-spectrum-disorder https://www.carolinatherapeutics.com/service/specialty-evaluations/ https://www.dukehealth.org/locations/duke-autism-clinic You can also contact the Autism Society of NC and ask for them to direct you as they will know the local resources – https://www.autismsociety-nc.org/find-a-diagnosis/?gclid=CjwKCAjw7rWKBhAtEiwAJ3CWLMwb2MlPnh3y3sHpNOEc9ZUpUvuC1G2fqKmtnT-u8ZqMAixMUPNVIRoCkVsQAvD_BwE
Am from Vidalia Ga, Could you please help me find Where an a adult get diagnosed for autism. Any advice would be appreciated.
Renea, here is a list of therapists and psychologists in your area – https://www.psychologytoday.com/us/therapists/autism/ga/vidalia I do not know who is good or not. This is all I could find for you.
I believe that i might have autism. Adoctor told me that i have add.I hate being around people,dont go outside,dont bathe,shave,cut fingernails dont want to do anything.Im a 34 year old man living with mom,she takes care of me.I cant work because cant pay attention. Please help me,my mom is very sick and i have no one if she dies.I cant do anything without mom helping me.I need a diagnosis. Where can i get one?
William, you would have to let me know where you are located in order to pinpoint resources for you. You can also reach out to your local autism society for help and guidance.
I’m a 20 (soon to be 21) year old female and within the last month or two, I’ve realized that I’m quite possibly on the spectrum and I have habits/traits that have even made my best friend ask me if I ever considered that I was on the spectrum (I had, but hadn’t told a single soul my suspicion until he asked me), cuz certain things I say and do made him wonder. I’m living near North Bend/Coos Bay Oregon and struggling to find resources to help. I’m just seeking some form of validation I guess. It just makes sense to me that I have it, especially considering certain things about my childhood and reasons why I do certain things. Both my siblings have had some form of it, my dad was diagnosed with it as an adult Trans male and my grandfather has it too.
Here is a list of counselors, therapists and psychologists who work in the field of autism in your area. You would have to contact the ones that fit to see if they are trained to diagnose an adult on the spectrum – https://www.psychologytoday.com/us/therapists/autism/or/north-bend . You also have an Autism Of America Society chapter that you can contact for more information on local resources in the area of adult diagnosis – https://autismsocietyoregon.org/support/support-groups-by-region/aso-region-4/
I have been struggling with the idea that I am likely on the spectrum for a few years now… online assessments agree with a diagnosis. I don’t really have the resources for a professional diagnosis… do you have any insight on resources near the Appleton, WI area so I can get more information and maybe even peace of mind? Thank you so much!
I would contact the Autism Society of Greater Wisconsin to see what supports are available for adults – https://www.autismgreaterwi.org/find-resources/ . As I said in my article, adults can self-identify without an official diagnosis. Here is a list of support groups – https://www.autismgreaterwi.org/supports-groups/ This Wisconsin group for adults meets by Zoom and could be a good place to start – https://www.assew.org/swan/
Hi, I’m going on 29 and believe I may have autism. I was diagnosed with ADHD growing up and had classes in certain subjects that catered to children with iep’’s ; but the older I get and the more complicated it becomes to thrive socially and in general, I believe I may have Autism and that it just wasn’t diagnosed. I live in Detroit’ Michigan. Could you send me diagnostic resources and places to get testing,as well as support groups in my area? I could use the support regardless of if I get an official diagnosis or not. I’m sure I’m most likely on the spectrum. But an actual diagnosis would help me get access to resources that can help me thrive.
Annira, I would reach out to your local autism services – https://autismallianceofmichigan.org/diagnosis/ Here is their contact us page – https://autismallianceofmichigan.org/contact/ I don’t know what county Detroit is in, but here is the list of adult resources in Michigan – https://www.autism-mi.org/local-resources/?&cn-cat%5B%5D=11 I would also contact that organization to ask who they recommend for an adult diagnosis – https://www.autism-mi.org/contact/
You will notice in this article that I wrote there is a link to all of the support groups online -https://autismandhealth.org/?a=pt&p=detail&t=pt_aut&THEME&SIZE&s=aut_meet Most support groups are meeting online at the moment due to the pandemic. Here is the list of Facebook support groups – http://www.myspectrumsuite.com/autism-facebook-online-community-groups/
This organization may also be able to help as they are an adult autism resource center – https://www.autismgrownup.com/contact
My husband has many of the symptoms of Autism. He became angry when I told him and refused to see a medical professional. Any advice on how I can encourage him to get help?
Perhaps leave some literature or information around so that you husband can read and discover it at his own pace. I have listed a number of resources in this article.
My son was 2 when he was diagnosed, and there was no shortage of pediatric neurologists. But now I’m trying to help a friend who believes her 31 year old son is on the spectrum. He is also hearing impaired. How can we find a specialist who can make ASD diagnosis? We are in Cleveland.
Adult diagnosis is always harder to come by than a pediatric one. Here is the list of therapists and pyschologists in Cleveland – https://www.psychologytoday.com/us/therapists/autism/oh/cleveland I can’t comment on any of them as I live in Canada. You could also phone this adult autism center and ask if they know who can give an adult diagnosis – https://wexnermedical.osu.edu/primary-care/adult-autism-center The Autism Society of Greater Cleveland may also know who is able to diagnosis adults – https://www.asgc.org/contact-us I would contact them since they are a local organization.
Hi,
I am a 34 year old woman who very likely has autism, but cannot seem to find anyone that diagnosis adults. I have done a lot of research and calls to no avail. I’m very frustrated and just want to know one way or the other if I could just find someone that does that. I live near Bowling Green Kentucky. Do you have any suggestions? They would be greatly appreciated.
Kelley, if you go to this page you will see all the resources for adult autism in Kentucky -https://www.kyaca.org/resources-for-adults/ You will see the first tab is Assessment/Diagnosis. While Murray State University only diagnoses up to age 18, I would call them and ask if they know who does adult diagnostic testing- https://www.murraystate.edu/academics/CollegesDepartments/CollegeOfEducationandHumanServices/coehsacademicunits/EducationalStudiesLeadershipandCounseling/cac/autismcenter.aspx
I am growing increasingly frustrated trying to get diagnosed at 50. I have been working with Haughland on Billingsley Rd here in Ohio; but the therapist is convinced I am not autistic so I just feel like she is not approaching me in an unbiased manner. ASD explains me, my inner world and my childhood. I don’t understand why she won’t listen to me.
Colleen, women have a much hard time receiving a diagnosis, particularly in their later years as autistic females looks different than males. As you read in this article, many people self-identify. Self-diagnosis in the adult autism community is widely accepted. If you scroll down this article, you will see there is a section for resources specifically for women. You may also try contacting someone who has more of a specialty in working with females like Dr. Ruth Aspy. https://texasautism.com/blog/services/aboutus/
Thank you for the article. I was wondering where I should look for potentially receiving a diagnosis at 32. I live in Suffolk County, New York. I’ve been having a hard time trying to find someone who might be willing to see me, as most of them only treat children and young adults. Counselors I’ve seen have been dismissive and chalk up a lot of my issues to anxiety and/or depression, and while I do experience those things, these diagnoses never feel like they address the whole problem. There are issues I’ve been experiencing since as long as I can remember and what I’ve learned from researching autism these last few years matches so much of my lifelong struggles. I feel like I’m running up against a lot of dead-ends. I’d appreciate any advice.
Robbie, have a look through this list which has the names of therapists and psychologists who work with adults – https://www.psychologytoday.com/us/therapists/autism/ny/suffolk-county , https://www.eepservices.org/services.php . Ask your local chapter of the Autism Society of America if they can make any recommendations – http://www.nsasa.org/contact-us/
We live in Georgetown Texas and would like to know w here to get my 21 year old son tested? We have discussed this in length and after some research, he feels he is on the spectrum, but we don’t know where to start. Any help would be appreciated.
Becky, please contact the Autism Society of America Texas Chapter and ask who is available in your area to give an adult autism diagnosis – https://www.texasautismsociety.org/ . Here is the list of therapists in your area that can diagnose autism – https://www.psychologytoday.com/us/therapists/autism/tx/georgetown https://www.findatopdoc.com/doctor/2524491-Peggy-Goulding-psychologist-Georgetown-TX-78628?zipcode=78628
where would an 19 year old go for a diagnosis in Lake County Flordia? She has graduated last year, never diagnosed but has many traits.
Dear Miranda,
Here is the list of therapists and psychologists who can help with an adult diagnosis – https://www.psychologytoday.com/us/therapists/autism/fl/lake-county ; https://cfl.ucf-card.org/
So far, I was diagnosed with adhd at age 27, along with anxiety/depression. With new family medical history and with my own kids having asd traits, I have seriously considered asd being the missing piece after life long struggles with social interaction, communication and sensory sensitivity. Almost like I know I’m in the right circus tent, but the ring I’m standing in lacks the size to fully support the events..
I see a therapist, but they haven’t taken my desires for an official eval all that serious and haven’t offered to put in a referral. The pain from the social and communication struggles with employers and other siblings has caused great emotional turmoil where I’ve contemplated taking my life. I live in the Indianapolis area and don’t know where else to turn. Trying to go through my insurance website feels overwhelming, so I feel very stuck. Where do you suggest I seek to get an eval done whobdoes well in evaluating women in a timely manner?
Could I please get some information on where I can get an adult autism diagnosis in florida please
Jean, you have not told me where you are in Florida so I will give you a few options. https://centerforanxietydisorders.com/aspergers-diagnosing-autism-in-adults/, https://www.msmc.com/adultautismclinic/ , https://www.autismfl.org/contact-us , https://www.autismfl.org/adulthood , http://tampabaypsychology.com/ados-testing
I’m not an adult, but a teenager, and I am quite confident that I may have autism. I really would like to be sure of that so pursuing a diagnosis seems like a good idea. How would you go about that in OR?
Ellie, I am not sure if you are under the age of 18 or not. You should probably make an appointment to see your doctor and ask how this process can be done in Oregon. You may need to have medical insurance to have the cost of an assessment covered. You have an Autism Society of America chapter in Oregon and it may be helpful to contact them for information – https://autismsocietyoregon.org/what-is-autism/diagnosis/ Here is a clinic that diagnoses – https://newleavesclinic.com/services/learning-differences/ List of autism therapists, some who will diagnose, in OR – https://www.psychologytoday.com/us/therapists/autism/oregon https://www.eugenepsychassessments.com/asd
Since you haven’t told me where you are located in OR, I have to give you a broad list of possibilities.
Can you please provide reccommendations for a provider in New Mexico that can diagnose a 19 year old male?
Melissa, here is some information for New Mexico – https://www.nmhealth.org/about/ddsd/pgsv/autism/ Providers listed under Medical Diagnosis on this resource page – https://nmautismsociety.org/resources How autism is diagnosed in NM – https://www.cdd.unm.edu/ecln/FIT/pdfs/FIT2017/How-is-Autism-Diagnosed.pdf https://www.medicinenet.com/autism_screening_and_diagnosis/albuquerque-nm_city.htm
My 20 year old son is most certainly on the spectrum. I need him to be formally diagnosed so he can get disability. How is this possible when he refuses to get help? I’m a struggling single mom and he lives with me. It’s so hard. I do my best with him but it’s so much.
Dear Kim,
If you are not his legal guardian, then you can’t tell him he has to seek a diagnosis. If you are supporting him and he is living at home with you, perhaps you could have some kind of a talk saying you are willing to continue to support him but that you are worried that he will need additional support beyond yourself should something happen to you. You want him to be well and so as well as he can, so you would like to do the right things to make that happen. Receiving a diagnosis is a life changing event for people, therefore you have to go at this slowly and probably talk about this many times. You may want to have some literature around on the topic such as Cynthia Kim’s book – https://autismawarenesscentre.com/shop/assessment/think-might-autistic-guide-autism-spectrum-disorder-diagnosis-self-discovery-adults/
I live in Kansas City, MO and have no idea where to get tested or diagnosed.
Here is the list of therapists who can potentially give an adult autism diagnosis – https://www.psychologytoday.com/us/therapists/autism/mo/kansas-city This one has the ADOS testing training – https://www.psychologytoday.com/us/therapists/autism/mo/kansas-city/755566?sid=6085ddce79f8a&ref=2&tr=ResultsName This is also a great list of resources – https://dmh.mo.gov/dev-disabilities/autism
Are there any resources for testing in South Carolina? I’m 18, and I really believe I’ve gone undiagnosed until now, I’ve done a lot of research and reading about other autistic people’s stories really solidified my belief ‘ cause I can relate so deeply. But no one believes me or hears me out, and when I brought it up to my Dr she wouldn’t listen either, and I don’t know if there’s any other options
Beck, you may want to contact your local autism society and ask what support they offer for someone looking for an adult autism diagnosis – https://scautism.org/ . List of who diagnoses in SC – https://scautism.org/what-is-autism/diagnosing/ Since you are still under 21, have a look at this – https://msp.scdhhs.gov/autism/site-page/get-asd-diagnosis Services available for adults- https://www.scbar.org/public/get-legal-help/common-legal-topics/autism/
27 years old, DFW area in Texas. Going through a process with my PCP, but it looks doubtful that they’ll give me an ASD diagnosis… all of the tests that were done are relating to anxiety, ADHD, eating disorders, etc. Would love to know where I can go directly for some potential answers.
Hallie, you can always seek a second opinion. Also – if you will see in this article that many adults self-identify and never get a formal diagnosis. You can take a self-test and see where you score. You can also look at paying privately for an assessment: https://www.austintestingandtherapy.com/spectrum_disorder/ , https://newsompsychological.com/adult-assessment/ , https://calliercenter.utdallas.edu/evaluation-treatment/adult-autism-spectrum-disorder-programs-services/
Hi, thank you for your article. I would love information on how to get diagnosed. I’ve always struggle with certain things through life. My son got diagnosed and I certainly see things similar in me. Probably being now I’m in my late 40’s. So not sure if it would help at this stage. I live in UK Wales.
Michelle, I would contact the NAS – Cymru to ask what the process is for getting diagnosed in Wales- https://www.autism.org.uk/directory/t/the-national-autisticsociety-cymru-centre-cardiff Integrated Autism Service in Wales offers adult assessment so maybe start there – https://autismwales.org/en/integrated-autism-service/ This organization also does diagnosis – https://www.autism.org.uk/directory/h/hywel-dda-autisticspectrum-disorder-diagnosticse Not sure where you are in Wales so I have provided a few starting points for you.
Could I get some resources on getting a diagnosis? I’m 19 and live in Indiana.
Roan, you can contact the Autism Society of Indiana – https://www.autismsocietyofindiana.org/resources/ Here is how you get a diagnosis in Indiana – https://www.iidc.indiana.edu/irca/learn-about-autism/how-and-where-to-obtain-a-diagnosis-assessment-in-indiana.html You may also find this an interesting read – https://www.in.gov/fssa/ddrs/files/Indiana_State_ComprehensivePlan_for_ASD_05.08.2019.pdf
hi.
Please can you help me with resources to get an official diagnosis for a boy of 28 years old in new yor city? They are a low income family and his mother just died of covid. please any info its apprecited. thanks
In NYC, you can go privately to http://www.spectrumservicesnyc.com/ but I have no idea what the cost would be. Here are some other options but I do not know anything about coverage, costs, or low income supports with these clinics:
https://www.lieberclinic.com/high-functioning-autism-services
https://icahn.mssm.edu/research/seaver/patients/treatment
How an adult autism diagnosis is done in the USA – https://www.aane.org/resources/adults/aspergerautism-spectrum-diagnosis-adults/
I have been thinking about getting tested, bit don’t even know where to start looking. I never thought much about it until my partner, who was dating someone before me who was autistic, asked me if I was, pointing out some things. And I always put it up to BPD or Depression. Bit I’m in California looking for answers.
Chase, here is a list of people who diagnosis adult in CA. You will have to go for an assessment with someone who is trained in using the diagnostic tools. You may need a referral from your doctor – not completely sure, though.
Los Angeles:
Dr. Alexander Gantman
Joel Schwartz, PsyD, Neuro-divergent affirming and specialized in adult diagnostics
Email: dr.jschwartz1@gmail.com
(424) 265-8185
La Concierge Psychologist, Adult Autism Assessment, Email: drlee@laconciergepsychologist.com (424) 272-6650
Orange County:
Dr. Michael Linden, Linden Attention Learning Center
Sacramento:
Dr. Debra Moore, Fall Creek Counseling Associates
San Francisco:
Mario Sandoval PhD
Santa Monica:
Dr. Rachel West
Temecula:
Dr. Vincent Shanks
Search these SoCal listings from Autism Learning Partners – https://www.autismlearningpartners.com/autism-spectrum-disorder-diagnosticians#Southerncalifornia
You can also contact the Autism Society of California as they can guide you through the process – http://www.autismsocietyca.org/
I live in Massachusetts and I am quite positive that I have ADHD and ASD. I’m 37 and have been struggling through every aspect of my life for as long as I can remember. Where do I even start to get some help? I made an appt to see my GP but that appointment is not until June 29th due to Covid. Is there anywhere else I can turn for help?
Autism Alliance has a list of resources in your area – https://www.autismalliance.org/resources
https://ne-arc.org/services/autism-and-specialty-aba-services/autism-support-center/
https://disabilityinfo.org/records/autism-society-massachusetts-chapter/
https://www.childrenshospital.org/centers-and-services/programs/a-_-e/autism-spectrum-center-program/resources/new-england-and-national-resources
Many organizations are not seeing individuals in person right now due to COVID so help may be limited. Contacting your local autism society will be the best place to start.
I’m looking to be diagnosed, and I live in NC. Thank you for your help!
For diagnosis in NC, here are your options – https://southeastpsych.com/
Autism Society of North Carolina – https://www.autismsociety-nc.org/talk-with-a-specialist/
The Carolina Institute – https://www.cidd.unc.edu/services/clinical/
https://www.etheridgepsychology.com/autism-spectrum-disorder
https://www.carolinawellnesspsychiatry.com/services/autism-spectrum-disorder
I’m a 27 year old person in Ohio. Are there resources for testing here?
Here is the link with the number to call for autism testing in Ohio – https://wexnermedical.osu.edu/mental-behavioral/autism Here are two other people that diagnose adult autism in Ohio:
Columbus:
Dr. Carol Bline, Developmental Associates
1555 Bethel Rd.
Columbus, OH 43220
(614) 578-1165
Westerville:
Sandra Webster, Westerville, Ohio 43081, 444-271-1913
My son’s pediatrician noticed possible signs at age 4. He was also tested at age 15. Both times a negative result. Now he is 30 years old (living at home, unemployed and no education beyond HS, with many traits of ASD). I know there are probably local resources for us but the biggest hurdle is getting him and my husband to accept that this is still an issue we need to deal with.
You don’t need a diagnosis as an adult to access support groups and services that most autism societies offer. You may want to contact your local one and ask how you can come up with a plan to help your son move forward in his life. At some point, he will not be able to live with you as you age and maybe require care yourself.
I am DESPERATE to be diagnosed. I have always known. I have tried to get help on my own and it has always ended very badly. My sister has Classic ASD although she is considered high functioning she has the mentality of a 5 year old. My family thinks I am just jealous of my sister and that I am a flake for not having friends or being able to hold a job. They say I squandered my life. Right now my parents help me out but they are old. What happens when they pass and I cant take care of and support muself but am expected to take care of my sister? I am in Huntington WV. I NEED to be diagnosed so that I can recieve ANY help out there avaialable so that I can become independent and be able to care for my sister when the time comes. Any suggestions on where to get help is appreciated . 304-963-0578
Here is the West Virginia Guide to accessing autism resources in the state https://www.marshall.edu/atc/files/WV-Guide-to-Accesing-ASD-Resources.pdf Marshall Health diagnoses ASD – https://www.marshallhealth.org/services/psychiatry-child-adolescent/autism-evaluation-treatment/ Not sure if VCU diagnoses adults with ASD, but I would contact them – https://vcuautismcenter.org/resources/screening.cfm List of therapists who may be able to help – https://www.psychologytoday.com/us/therapists/autism/west-virginia List of organizations who do diagnosis and assessment in WV – https://ascv.org/resources/resource-directory/diagnosis-assessment/
This should give you a number of places to contact and get this process started.
Any recommendations for where to get tested as a 25 year old in Minneapolis? Thanks.
Ray, please go to this link and then select Youth, Young Adults, and Adults. Some information will then open for you through this link with all the links to where to call and what to do to get a diagnosis as an adult in Minnesota. https://mn.gov/autism/about-autism/screening-and-identification/
Does anyone know of any dr.s in GA that would do an assessment on a 27 year old woman?
Thank you so much for this. I’ve been misdiagnosed for almost 30 years. I’m 46 now and when I first read and researched ASD in adults all the sirens and bells starting going off. It all sounded like they were describing me. I broke down crying tears of joy to think that this might be one of the answers I’ve been looking for my entire life. I’m in SD now but having a hard time finding testing locally. I don’t know where to start and which are credible or not. Any suggestions of where to start? I have a Psychiatrist and she agreed with the testing, but I don’t know where to go.
Jay, the University of South Dakota has an ASD Clinic and they do diagnostic testing in Sioux Falls – https://www.usd.edu/medicine/center-for-disabilities/autism-spectrum-disorder/autism-spectrum-disorder-clinic I know this is a list for Family Support, but I think you could email some of them to ask for direction for adult services in your area. https://www.usd.edu/medicine/center-for-disabilities/autism-spectrum-disorder/family-support Centre for Disabilities contact information – https://www.usd.edu/medicine/center-for-disabilities/autism-spectrum-disorder/contact-us
This should give you a starting point.
Thank you for this. I have joined support groups as a self-diagnosed ABA therapist. I’m in a hard place as you see what I am feeling and what my job is. I am based in New Jersey and can’t seem to find a therapist who is skilled in evaluations. I have taken all the screenings I can that are offered online as well as RAADS and AQ. I believe I have gone undiagnosed. In schools I’ve had learning disabilities and I catch myself stimming a lot on music and feeling physically different if I walk a different path or someone moves an item in my room. It’s hard differentiating between my anxiety and OCD or if its undiagnosed ASD. I alos suffer from blackout angers and I have a feeling they may be autism meltdowns not IED.
Nicole, thank you for taking the time to write. I am not sure where you are in NJ, but I just did a little bit of research and found a few links that may be helpful to you:
https://www.autismnj.org/information-services/age-related-concerns/adult/
https://www.state.nj.us/humanservices/ddd/documents/Documents%20for%20Web/ThroughtheMazeReport_0511.pdf
https://neuropsycheval.com/neuropsychological-testing-nj/autism-and-aspergers-assessment-testing-nj-ny/ (may only see children, but I would ask if he knows of someone in his field who does adult diagnosis)
https://bestofnj.com/features/monthly-observances/autism-awareness-month/autism-resources-for-nj-families/
Let me know if you need any additional guidance.
I feel like my grandson was misdiagnosed as a child, given Adderal which made him sick and hallucinate, and actually has autism. Trying to get him diagnosed now at age 24. I’ve been researching about this, and feel we need more help in this area for adults who know something is wrong and are misdiagnosed. Thank you for your article!
Patti, I am glad you found the article helpful. Adult diagnosis for ASD is more common that you might think.
…and I still don’t know how/where to get a diagnosis. Gotta love those misleading titles
Jenna, if you read the article, there is a section of it that says “Assessments”. Below that is how you go about getting a diagnosis –
Assessment for Autism Diagnosis
A formal diagnosis is done by a psychologist, psychiatrist, or neuropsychologist who does adult ASD assessments. A good place to start to find such a person is through your local autism society or by contacting the governing body for that profession. Most have a college or association and they may be able to provide you with some names of people in your area. You can also ask around, maybe through members of a support group. How did they get their diagnosis – who did it? If there is a local university or medical teaching hospital, there may be a psychology department you can be referred to.
If a formal assessment is too expensive, contact the local autism society or services organization to see if they have someone on staff or a consulting psychologist. Some universities, hospitals or clinical centers offer assessments by supervised graduate students who need practical experience in diagnosing. If you are in on-going therapy for other issues, a therapist may suggest the possibility of ASD and be willing to give a diagnosis.
Keep in mind that there is no standardized screening tool tailored to adults that is universally endorsed. Some of the autism tests specifically designed for adults are: ADOS 2 Module 4, ADI-R, 3Di Adult, OCI-R, AFQ, SRS 2, RAADS-14, AdAS Spectrum.
Because I have an international audience that reads these blog posts, I can’t provided specific names and organizations who diagnose adults by location. If you let me know what area and country you live it, I can usually pinpoint who does a diagnosis for adults.
Thank you for this article! I think my husband is on the spectrum and I’ve been talking to him about getting a diagnosis and this article was helpful understanding how to get a 29 year old diagnosed!
I am glad you found this article helpful. There are many adults who are now seeking a diagnosis so your husband is not alone. There is a much greater awareness now around autism.
Hi , I live I Pennsylvania my name is Beth
I’m not sure if I’m autistic beacuse I’m really socially inclined..but I have no friends. I just talk to people about anything. I’m also having a hard time finding a dr near me who can help. I dont want to be turned away . I’m kinda lost. I reached out to Ruth as you said in your other article to do for several other people. She said she cant help out of state. I understand I’m just wondering where to go next. Do you have advice?
Hope this make sense and doesn’t sound desperate.
Beth, you don’t sound desperate at all – you just want some answers. Here is a list of the psychologists who work with autism on the spectrum in PA – https://www.psychologytoday.com/us/therapists/autism/pennsylvania
The other thing you could is contact the Autism Society of PA and ask if they can recommend someone – https://autismofpa.org/ They would probably know who could help you in your state.
Thanks for this article, it was very helpful. Although I didn’t care for the test very much bc I didn’t understand some of the questions. What does it mean for your memory to be a steel trap? Or what is an “eccentric professor”?
Renee, it would be easier if the writers of the test just said what they mean. A steel trap memory is having an excellent memory and you don’t forget things easily. Eccentric professor means a person who is very intelligent but behaves in a strange and unusual way.
Well, this just summarized my entire life. “Strong academic performance did not necessarily result in gainful employment. There have been problems expressing emotions, socializing, maintaining relationships, or on-going mental health issues such as anxiety or depression.”
I tried that test but it seemed very stereotypical, like the math and professor questions. I’m still looking for a test to help in self diganosis .
Jennifer, there are lots of self tests for autism available. Just go to Google and put in Self Test for Autism or Self Test for ASD and you’ll see other options.
Maureen Beenie i under stand ! its not straight through! it took several re-routings and fancy footwork to finally get through (*45min it took me)
i had to stop a re-start once. i can’t imagine if i was worried or rushed. 🤔😥😯
i need help for my daughter and i am at my wits end also! – covid is a disease killing the world lets not let it kill our spirits though
Can anyone help please
Linda, you will have to be more specific. Help with what – receiving an adult diagnosis? Support group? How adults are assessed?
Very insightful, thank you
I clicked on the online ASD test and nothing comes up.
Here is the direct link to the test – https://www.additudemag.com/screener-autism-spectrum-disorder-symptoms-test-adults/ . Your computer may be blocking the external link.