For many of us with children on the spectrum, support people like doctors, therapists, extra school staff, teachers, aids etc…are a big part of life. We depend on the help we get from various sources, but what happens when a situation goes badly? Even more important, how can we create predictability for our kids with autism so we can ensure greater…
Predictability is the ability to know and understand what is coming up next in your day. Many of us feel less anxious when we know what is expected of us, and how we are going to navigate our day to day lives. For someone on the spectrum, where even knowing which washroom to use -unless it is exactly like the one they are used to using at home- can be a major challenge. Predictability is a way for someone on the spectrum to assuage their anxiety over the unknown, and empower themselves into their daily tasks. For some of the spectrum, not knowing what to expect at a new school, in a new restaurant, or while on vacation can make life unbearable for themselves and their caregivers.
I’d like to share some thoughts for making travel with children on the autism spectrum successful. I have spoken about predictability in past blogs. Individuals with autism need to know what is going to happen to them. Leaving home means everything is going to be different. Here are 10 ideas to create predictability when travelling:
Parents of autistic children often finding eating, feeding and mealtimes a struggle. If parents reach out for professional help, they may not be able to find it because of the limited number of specialists dealing with eating and feeding disorders; finding a specialist who understands and has experience with autism spectrum disorders can be even more difficult. Picky eating, food…
Autistic individuals often have difficulty falling or staying asleep. It is estimated that 40 to 83% of autistic individuals have some form of sleep disturbance. Autistic children are twice as likely to have sleep issues as typical children or children with other developmental conditions. Disordered sleep is also one of the first concerns reported by parents. As diverse as autism…
The Christmas holidays are a time of great excitement and anticipation. Holidays also mean changes in the schedule, visitors, crowds, line-ups, noise, and socializing. For children with ASD, the Christmas holidays can be a stressful and anxious time. Meeting family demands can be especially nerve-wracking, particularly if you want to break with time-honoured traditions that just don’t work for a child with autism. Here are a few ideas for making the holidays happy.
Last summer, my husband and I were shopping for a fire bowl for our backyard. Since we knew nothing about them, I wanted to ask for guidance from a salesperson. This young man came walking down the aisle so I inquired if he could direct us. I told him about our vision of having our two autistic adult children, Marc…
The arrival of summer can mean a change in routine because of the school break, summer camps and activities, a family vacation, visitors, longer lighter days, and more free time. Change can be upsetting for autistic people because it makes things feel new and unpredictable. Changes in routine may require some additional support to make them less upsetting. Some transitions…
Low demand parenting or the low demand approach is often spoken about in the context of Pathological Demand Avoidance (PDA); however, this can be helpful for a person who experiences high levels of stress and anxiety. This is a low arousal approach because it prioritizes the reduction of stress and anxiety and is based on trust, flexibility, collaboration, and a…
Not everything in life goes according to plan – when change happens, we need to be able to adapt. While autistic people need predictable and consistent routines, it’s still important to be able to cope with changes both planned and unplanned. Having flexibility will build resilience, problem solving skills, and help a person to overcome changes and challenges. In order…
Perseveration is when a person has repetitive thoughts and dwells on negative incidents, causing them to become “stuck”. Perseverative thoughts can happen because a person may be trying to manage stress, process information, shift attention, can’t stop thinking about certain things, or can’t control behaviors. This kind of thinking, or looping thoughts, is not done consciously or on purpose. It…
An autistic person wrote to me and asked what might be the reason they are experiencing difficulty starting a task. This got me thinking about autistic inertia. Quincy Hansen, autistic blogger, defines it as: the tendency that autistic people have to want to remain in a constant state. When we’re asleep we want to stay asleep, when awake we want…
Christmas can be a magical time filled with decorations, treats, presents, twinkling lights, and excitement. It can also be a stressful time for autistic people because of schedule changes, visitors, sensory overload and unpredictability. Here are a ten tips to help make this holiday season an autism friendly one. Maintain routines for predictability. Try to stick with routines like bedtime,…
Visual supports are the cornerstone of communication. They provide structure, routine, consistency and predictability. When a person understands the expectations and knows what to do, they are more independent and confident. Visuals can give a non-speaking person a voice or provide another way to communicate when anxiety and stress take over and words fail. There was a study that found…
Parenting an autistic child can feel overwhelming at times. Parents want to do their best for their children, but it can be hard to sort out what should be prioritized over something else. You can’t do it all – so what should you focus on? My two autistic children are now adults, and I can look back over the years…