autism funding Archives - Autism Awareness
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Autism News Tagged "autism funding"

Autism’s Social Barriers

The chances of detection and treatment depend on who you are and where you live

By PAULINE TAM, Published in The Ottawa Citizen

OTTAWA — It’s the unspoken rule about autism services that Anne Jovanovic knows all too well: Getting help for her son, Mica, requires her to wage a constant war with the gatekeepers of provincial programs.

Since Mica was diagnosed two years ago, Jovanovic has parsed government documents and doggedly pursued officials to press her case. In doing so, the federal public servant has established herself as a mother whose demands can’t be easily dismissed.

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Caveat Emptor or Buyer Beware – Know Your ASD Services

I had an eye-opening experience this week with my social worker about my children’s services. I’ve almost run out of funding on my current contract that will expire next month. Part of the reason for this is because I have not been accessing all of the correct programs. When I said I didn’t know about a certain program, I was told it is my job as a parent to know what the programs are available and what I should be accessing. It’s on a website, which is transparent, and I should be able to figure out all of the information from there. I was dumbfounded because how do you ask a question and search for information when you don’t even know the right question to ask?

I had a similar experience when my son was younger and was still in diapers until the age of 9. A parent told me in passing that I was eligible for funding for diapers because my son was over the age of 3. Why had no one on my professional team ever told me about this program? Same thing with the disability tax credit – another thing I stumbled upon on my own quite by accident.

It boils down to this – caveat emptor or buyer beware. You have to think of yourself as a consumer even where autism supports and services are concerned, read the find print, and do some investigating to find out what you qualify for. So where do you start and who is in the know?

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