advocacy Archives - Autism Awareness

Autism News Tagged "advocacy"

Insecure – Advocating Never Stops

I recently had a very upsetting thing happen. My adult autistic son’s daily living and medical benefits were abruptly terminated. I learned of this by hearing a brief message left on my phone. The person from the AISH benefits office said my son no longer met the eligibility criteria for his benefits because his assets amount was too high. We…

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For those of us with autistic children, becoming autism “experts” is a survival skill

It’s not often that I write about personal issues I am facing with either of my children on the autism spectrum, but this struggle has to be told because I would hate to see other parents go through what we have for the past 3 months.

Our daughter, Julia, has been in an inclusive setting since kindergarten. We have been fortunate in our choice of school because class sizes has been relatively small, the teachers have been accommodating and caring, Julia has been with the same supportive peer group since kindergarten, and she has had the same aide since the first day of school. Even with a severe coding for her disability, her aide support has been gradually reduced from all day in kindergarten, to 2 pm daily for grades 1 – 2, and down to mornings only from grades 3 – 6.

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