Answer: Finding the right person to provide respite or in-home care can be a daunting task. The person needs to be a good fit with both the child and the family. How do you find the best person? What qualities to you look for?
Every month I do a blog post for the Autism Calgary Association about what in the world is going on in the field of autism. Here is the February post.
The University of Ulster in Northern Ireland has launched a new Master’s Degree program that will expand and enhance the management of Sensory Processing Disorder by occupational therapists and other allied health practitioners. The new Master of Science in Sensory Integration degree is based on a series of modules conducted in partnership with the not-for-profit educational organization, Sensory Integration Network (UK and Ireland).
For individuals with as Autism Spectrum Disorder (ASD), dating can a real challenge. It is a misconception that people on the spectrum don’t want relationships – often they do, but they just don’t know how to meet people or understand the nuances of relationships. How do we effectively teach relationship skills?
I recently became a guest blogger on the Autism Calgary website. I am writing a monthly blog called What in the World is Going On? which features the latest news in the field of autism. Here is my second post for the month of January that I’d like to share with our Autism Awareness Centre readers.
As we welcome in the New Year, let’s have a look back at the Autism Speaks Top Ten Autism Research Achievements of 2011 released this list last month. Some highlights include genetics, prenatal vitamins, brain discoveries, and earlier autism screening.
The University of British Columbia has launched a pilot program for people with intellectual disabilities age 18 and up. The Canadian Inclusive Lives Learning Initiative (CILLI) 8 month web-based program gives participants the opportunity to learn about decision-making, employment, financial literacy, legal matters and how to access outside resources. The program is a combination of on-line learning modules and telephone sessions with facilitators. People with intellectual disabilities can enroll in the course on their own or with a family member or friend. Each month, participants log onto a website to complete a learning module on a topic. In addition, participants receive telephone calls from an expert on that month’s topic and a program co-ordinator who helps them incorporate what they’ve learned into their life plan.
Answer: When it is suspected that a child has autism, they are often placed on a waiting list for an assessment. The wait can be several months, sometimes longer. In the meantime, parents, grandparents, caregivers and other professionals would like to help that child in any way that they can. There is much that can be done even before an official diagnosis is given. If suspicions turn out to be incorrect, the help given will not have been harmful in any way. Where do you start?
As 2012 fast approaches, I like to spend time reflecting on the past year and all the things to be grateful for. I receive e-mails from all over the world and hear the struggles facing families and professional in other countries. Even though I complain at times, I do realize we have support and options in the field of autism in Canada. Although some areas of the country are stronger than others and more options exist in urban than rural areas, there is still support to be found in most areas along with funding.
I recently became a guest blogger on the Autism Calgary website. I will be writing a monthly blog called What in the World is Going On? which will feature the latest news in the field of autism. I will share my first post here with our Autism Awareness Centre readers.
National Autism Strategies play a big role in both Europe and the UK as a way of providing a framework for effective autism treatment, support and services. National standards raise the level of services, service delivery, best practice standards, and quality of care for people with ASD.
On November 2, 2011, Scotland announced its Autism Strategy. In addition to £10 million funding to help and support people with autism and their families, announced earlier this year, the Strategy for Autism commits to a further £3.4 million investment. It is estimated that 50,000 people in Scotland are affected by autism.
England passed their Adult Autism Strategy back in March 2010. The Strategy made recommendations for central Government as well as for local authorities, the National Health Service and Jobcentre Plus, focusing on five key areas. To read more about the Strategy, click here.
I recently returned from running our 4th annual conference in Bournemouth, UK. We partner with a school there called The Linwood School, which is a local school for children with special needs in the district or Local Education Authority (LEA), as they are called in the UK. I am fortunate to have the opportunity to speak with parents and professionals about the UK autism scene and observe firsthand what they do well. I know I am an outsider looking in so my impressions may be somewhat skewed, but I have to say there is so much that I admire about the programs and options that they offer for families.
Let’s start with early intervention. There is a program offered by the National Autistic Society (NAS) called the Early Bird Programme which is for parents whose child has received a diagnosis of autism spectrum disorder (ASD) and is pre-school aged (not yet of statutory school age). The programme is designed to support parents in the period between diagnosis and school placement, empowering and helping them to facilitate their child’s social communication and appropriate behaviour in their natural environment. It also helps parents to establish good practice in handling their child at an early age, so as to pre-empt the development of inappropriate behaviours. They use PECS, the TEACCH approach and the NAS’ approach called SPELL. The programme lasts for three months and combines group training sessions with individual home visits, where video feedback is used to help parents apply what they’ve learnt.
Whether you are a parent or professional, encouraging language development can be a difficult task. Many children with autism don’t seek out interaction with people and language delays/difficulties can impede the acquisition of speech. A lack of speech along with the ability to express wishes or thoughts can result in challenging behavior.
The other challenge with communication is a lack of nonverbal cues such as pointing or using facial expressions. Even before language develops, toddlers use nonverbal techniques to get their message across. Eye contact, eye gaze, and hand gestures can give an adult cues about what the child wants.
In today’s world, technology is all around us. We use computers, iPhones, iPads, video camcorders, digital cameras and DVD players. Using technology with the autism spectrum disorder population can be beneficial. These items offer a visual way to organize information and offer quick accessibility. Programs are predictable; the repetitive way in which we use tech devices creates comfort and independence as familiarity grows. The user can work at a suitable pace. Many programs reinforce or encourage with positive comments such as “good job” or “well done” accompanied by a pleasing sound or visual which motivates.
Looking for an appropriate person to provide respite or in-home care can be a daunting task. The person needs to be a good fit with both the child and the family. How do you find the best person? What qualities to you look for?
Before you even start looking and interviewing, ask the following questions and write down your answers:
- What are our family values?
- Do you want someone who shares your family values or do you want to introduce your family to different ways of thinking?
- What kind of pace does your family feel comfortable with?
- What is your lifestyle – casual or formal?
- Is your family structured with routine or are you spontaneous?
- Do you value privacy or are you more open with personal issues?
- How much time are you willing to devote to train someone or do you want someone with a lot of experience?
Answer: There is a dizzying array of information about autism and what treatments/therapies work best. You’ll get advice from parents who’ll tell you how well something worked for their child. Medical professionals will have an opinion. Internet research, forums, and articles may also influence your decision.
A visual support can be anything that shows a student what to expect and/or what is expected on the student. The image itself may take any one or a combination of forms: objects, photographs, line drawings, printed words. The benefits of using visual supports with students with ASD are well established and can be obvious to even the casual observer in a classroom, home or community setting.