Maureen Bennie curates a news blog for Autism Calgary called "What in The World is Going On About Autism". Her blog often mines and expands on the articles and events that she has detailed in that news feed, as well as looking at current best autism resources, news stories, and events on a variety of topics about autism and ASD.
One of my most popular Facebook posts this month was about University of Regina’s Sarah Elizabeth Ivens’ thesis about parental fatigue entitled Fatigue in parents of children with Autism Spectrum Disorders: The role of parental and child factors for mothers and fathers. While most parents of newborn children have experienced some level of fatigue, many of us who have children…
Autism Calgary celebrated its 25th Anniversary on February 22nd with an exciting event – an evening with Temple Grandin. Temple spoke at the Calgary Hyatt Regency Hotel to a huge, enthusiastic audience of nearly 1200 people. She was in top form, delivering a two hour talk full of insight and practical information. Temple’s energy and enthusiasm for the subject of…
The most frequently asked questions I get tend to be about toileting training the child with ASD. The biggest quandry is knowing when to start the process. In many cases, you can’t use the typically developing child guidelines as these may not apply to a child with developmental delays. Although I have never found a study to confirm this, I feel that language development may be a factor in toilet training/readiness. The more limited the language skills are, the more delayed toilet training is. I am not saying, though, that a child with no verbal skills can’t be toilet trained. Both of my children were late talkers (almost 5 years of age) and both were late toilet trainers. My son was 9.5 years and my daughter 6 years old. They were both trained for uriniation earlier than that, at about age 4, but it was the bowel movement that was the hardest thing to train.
I attended an excellent seminar last night sponsored by the Autism Calgary Association. The guest speaker was Penny Gill, President of the Autism/PDD Family Alliance in Southern Ontario. Her presentation, Overcoming the Challenges: Teaching Someone with Autism Spectrum Disorder to Cook Really Well, showed us that you can teach someone with an ASD the important life skill of cooking provided the challenges are understood and the right supports are in place. Penny runs a cooking school out of her home for people with ASD ages 18 and over. Her eight week sessions work on more than just cooking; her students work on social skills, sensory issues, motor challenges and food aversions.
I have talked with many parents who, like me, have placed their autistic child on a special diet eliminating mainly dairy products and gluten. The elimination of dairy and gluten from the diet is also known as the GF/CF diet.
People who feel significant gender distress because their gender identity differs from their birth sex have higher than expected rates of autism. This is a growing topic of study and discussion as our acceptance for those with gender dysphoria grows. What is gender dysphoria? Gender dysphoria (GD), also known as gender identity disorder (GID) is the condition of distress (or…
Making eye contact has been a long debate in the autism community. Eye contact is a necessary skill for navigating social landscapes at work and school. Lack of eye contact is one of the hallmarks of autism, but should we insist on it? Why do children find it difficult to make eye contact? A new study, published in November in…
When you are a parent of a child with an autism spectrum disorder, you worry about the child’s future as an adult. Will they be able to live on their own? What happens if a parent is no longer able to care for their adult child? Canadian psychologist Dr. Lillian Burke believes only 3% of adults with Asperger Syndrome are able to live independently with no support. With this statistic in mind, what services and supports need to be in place to make the transition from the parental home to independent living? Can independent living be an option?
Shopping for the older child with autism can be more challenging. When toys are no longer appealing, what other options are there? Here are 10 ideas to take the guesswork out of gift giving. Passes to Attractions – movies, museums, special attractions such as amusement parks, gyms, swimming pool, recreational facility – see what’s available in your city or town.…
The holidays are just around the corner. Most schools are out on Friday, everyone is busy Christmas baking, shopping for Christmas gifts, the malls are packed, company is coming, presents need to be wrapped, and the tree needs decorating. The holidays are magical from some and stressful for others. For children with autism spectrum disorder (ASD), this time of year can cause anxiety and be particularly overwhelming on the senses. Lights, crowds, traffic, line-ups, and visitors can be upsetting for children who need predictability and routine. Most therapy programs are in low gear during the month of December, school programs break for two weeks, and respite care is hard to come by. How to you keep children with autism on an even keel during the hectic holidays?
Sensory processing disorder (SPD) has long been associated with autism, and its external manifestations are often what lead a parent to getting a diagnosis. For a many years SPD was seen as a “symptom” of autism, but a breakthrough study in 2013 found that this disorder had a biological basis that separated it from many other neurological disorders. More recently it was found…
While at the Autism Europe Conference, I had the great pleasure of listening to Swedish lecturer Gunilla Gerland speak about being a professional in the autism field. Having grown up with Asperger Syndrome in an unsympathetic environment, she had great insights. She wrote a book called Secrets to Success for Professionals in the Autism Field. Gunilla talked about essential tools…
This fall I had the opportunity to attend to the Autism Europe Conference in Edinburgh, Scotland from September 16-18 . This conference happens once every 3 years and is hosted by a European country (2019 will be in Paris, France). This sold out event had 1750 delegates from 60 countries attending. There were 300 speakers from across the world sharing advances…
Answer: Higher functioning individuals on the autism spectrum often go undiagnosed until school life ends and independence begins. When the routines and structure of school end and work or post-secondary education begins, young adults can start to feel the pressure. There are more decisions to be made, greater organizational skills required, less structure and an increase in social complexities. The parent-child relationship is often redefined at this stage of life. The young adult may want more independence from parents but does not understand how to do this.
If you have a child who is newly diagnosed with autism, or are thinking of starting a new therapy program for an autistic child, I highly recommend reading the article Which Therapies Can Help with Autism. The learning curve for therapies to help your autistic child can be daunting. Not every therapy works for every child, and it can take…